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Evaluation ViewAttendees 32

Adolescent Medicine

Advocacy

Clinical Bioethics

Core Curriculum for Fellows

EHR/Medical Informatics

General Pediatrics

Health Equity/Social Determinants of Health

Trainee
Session Type: Panel Discussion

Consent and Confidentiality in the Care of Adolescents and Young Adults

Saturday, April 26, 2025
1:00pm – 2:30pm HST
Location: Convention Center: 313 A
CE: CME: 1.5
Ethics CME: 1.5

Selected By: SAHM
Disclosure(s):
Richard J. Chung, MD: Ambetter of North Carolina (Terminated, June 30, 2024) (Products/Services: Advisory Committee)

Consent and confidentiality are foundational elements in adolescent and young adult (AYA) care, with profound implications for access, quality, outcomes, equity, and safety, and direct relevance to all pediatric health professionals caring for AYA across settings and circumstances. Dynamic evolutions in AYA care, including the technological context of care and payment and policy innovations, the rich diversity of youth seeking care, and the complex sociopolitical landscape make these complex issues relevant, timely, and of critical importance.

This session will begin with an examination of the developmental and ethical foundations of AYA consent and confidentiality, the complex fabric of state and federal laws relevant to consent and confidentiality in the United States, and the sociopolitical climate driving challenges to these provisions. Next, there will be a case-based panel discussion of key related challenges and management strategies in day-to-day clinical practice, with each case bringing into full relief critical issues and learning points, including strategies to minimize the risk of losing AYA patients’ trust while encouraging appropriate parent/caregiver involvement.

This comprehensive examination will be grounded in the 2024 American Academy of Pediatrics confidentiality policy statement and technical report and the SAHM position statement on confidentiality, with lead authors from these documents serving as presenters. This session will provide not only a comprehensive rendering of the foundations and implications of consent and confidentiality, but practical insights, strategies, and resources for advancing consent and confidentiality provisions in practice and thereby improving access, quality, safety, and equity for youth and their families.

Learning Objectives:

  • Describe three ethical principles that undergird consent and confidentiality in the care of AYA.
  • List two ways that state and federal laws influence confidentiality protections in AYA health care.
  • Delineate practical strategies for addressing key challenges in maintaining confidentiality raised by three real-life case examples.

Presentations:

  • 1:00pm – 1:30pm HST
    The Developmental, Ethical, and Legal Foundations of AYA Consent and Confidentiality

    Speaker: Richard J. Chung, MD (he/him/his) – Childrens Hospital of Philadelphia

  • 1:30pm – 2:15pm HST
    Case-based Panel Discussion

    Speaker: Elizabeth Alderman, MD (she/her/hers) – Albert Einstein College of Medicine

    Speaker: Carol A. Ford, MD (she/her/hers) – Childrens Hospital of Philadelphia

    Speaker: Jesse Hackell, MD (he/him/his) – New York Medical College

  • 2:15pm – 2:30pm HST
    Q & A