Clinical Bioethics
Health Equity/Social Determinants of Health
Nephrology
Palliative Care
Trainee
Taylor House, MD, MS (she/her/hers)
Assistant Professor Pediatric Nephrology
University of Wisconsim-Madison School of Medicine and Public Health
Madison, Wisconsin, United States
Tara Sardesai, MD, MS (she/her/hers)
Associate Professor
Children’s Hospital of Los Angeles
Los Angeles, California, United States
Aviva Goldberg, MD MA FRCPC (she/her/hers)
Professor. Department of Pediatrics and Child Health
Pediatrics and Child Health
Max Rady College of Medicine, University of Manitoba
Winnipeg, Manitoba, Canada
Laura Castellanos Reyes, MD (she/her/hers)
Assistant Professor. Medical Director, Pediatric Dialysis Unit
Cohen Children's Medical Center
New Hyde Park, New York, United States
Reya Mokiao, MD, MS
Acting Assistant Professor
Seattle Children's Hospital
Seattle, Washington, United States
Michael Freeman, MD, MA (Bioethics) (he/him/his)
Associate Professor of Pediatrics and Humanities
Penn State Children's Hospital
Hershey, Pennsylvania, United States
Workshop Description: Pediatric chronic kidney disease (CKD) has far-reaching impacts on children, their families, and communities. Families describe a need for care that is holistic and considers the multi-faceted aspects of their identities. Further, by increasing our attention to and support of such components of a child's family and identity, we create an environment in which chidren are positioned to flourish in spite of their CKD. Goals of this session include exploring the caregiver and sibling experience of caring for a child with CKD and ways to assess caregiver burden, understanding the role of palliative care services in supporting children and families and appreciating the cultural impact of chronic care managment and medical decision making.
