Children with Chronic Conditions 4

Children with Chronic Conditions 4

469 - "The Benefit is There, Right?”: A Thematic Analysis of Private Duty Nursing for Children with Medical Complexity in One State

470 - “It’s my life and not theirs.” Health and Medical Decision Preferences in Adolescents and Young Adults with Congenital Heart Disease

471 - An Ethnographic Exploration of Diagnosis in Children with Medical Complexity in Primary and Complex Care Visits

472 - Characterizing Hospitalizations for Feeding Intolerance in Children with Medical Complexity

473 - Do I Really Need to Know This? Pediatric Residents' Self Reported Perceived Relevance of Caring for CMC to Future Careers

474 - Engaging Secondary Caregivers in Research for Children with Medical Complexity

475 - Frequency of Technology Dependence in Hospitalized Children by Hospital Type and Teaching Status

476 - Improving Patient and Family Goal Setting in a Pediatric Complex Care Program

477 - Inclusion of Individuals with Intellectual and Developmental Disabilities into Research: A Process for Informed Consent

478 - Medication Delivery, Caregiving Network, and Caregiving Benefit and Stress among Child with Medical Complexity

479 - Pediatric Residents' Self Reported Confidence in Caring for CMC

480 - Priority Preparation for Healthcare Transition for AYA with IDD

481 - Provider perspectives on complex care and palliative care collaboration for children with medical complexity

482 - Respite and Personal Care Services for Children with Medical Complexity: A Thematic Analysis of One State's Complex System

483 - Where are the Gaps in Current Quality of Life Measurement in Measuring a Healthy Life for Children with Medical Complexity?